Eating Disorders Families Australia (EDFA) has been established by a group of Australian parents and supports who have cared for and treated a young person with an eating disorder, to advocate for the needs and roles of other parents during this experience. Parents and families of children under 18 years are seen by the service system to be vital to treatment and recovery, but not necessarily equipped or supported to be a part of this process. Parents and families of adult children over 18 years have an even less clear mandate and yet have a vital role to play in their family member’s well being and recovery.
Eating Disorders Families Australia (EDFA) acknowledges that not all parents and families are prepared to access their own resources and support or capable of playing a central role in the treatment and recovery of their family member with an eating disorder. However, it is best practice for all parents and families to be given the option and support to maximise their role in the care team. Such collaborative approaches result in better long-term outcomes for our loved ones, more resilient families and less impact on our health system.
Eating Disorders Families Australia (EDFA) sees parents and families of people with eating disorders as parents, carers, siblings, extended family or significant others.
Want to understand what it is like to care for someone with an eating disorder?
Gregg and Sarah Brown, parents of a young person who is recovered from an eating disorder, made this amazing video documentary for EDFA featuring 3 families telling their story of the impact of the eating disorder on their family and what they needed to do to support their loved one. To view this video go to https://youtu.be/anDnIvu4FjI
Access Peer Support
Learning and hearing from others who ‘get it’ and can provide helpful practical advice is a key to being able to support our family members effectively. EDFA ‘get it’ and are here to work on providing increased opportunities for people to connect in face to face settings, as well as online. For more information, click HERE
Can you help us with your time or skills please??
Eating Disorders Families Australia is a volunteer, not for profit organisation, supporting and advocating for parents and carers as they battle to save their loved one from an eating disorder, which are potentially life-threatening mental illnesses.
EDFA has two exciting initiatives requiring support with marketing communications/graphic design and administration.
- TBT-S: Following the success of our Temperament Based Treatment with Supports (TBT-S) training around Australia in 2019, EDFA will offer this training again in 2020 to encourage and support more clinicians to apply the TBT-S methodology. EDFA will need more people to help get this off the ground by joining our committee.
Skills needed include:
- Marketing: writing material for website, social media, and promotional flyers.
- General administration and logistical arrangement: arranging accommodation, venues, and minute taking.
If you are ready to contribute in this way, please contact the Portfolio Leader, Gordon Brockway, at gordon.brockway@edfa.org.au who would be delighted to hear from you!
- Strive Carer Support Groups: EDFA are planning to expand on their successful Melbourne Eating Disorders Parent Support Group, by training facilitators to run local support groups in each state.
Help needed including:
- Parents or carers with lived experience of caring for someone with an eating disorder (who is currently well) to volunteer to be trained as support group facilitators to run monthly meetings (as part of the EDFA team) to support other parents and carers as they navigate the difficult road to guiding a loved one towards recovery.
- Brochure drop, fundraise in your local area
If you feel you would like to give back to support other carers, be a voice of hope and encouragement, and are willing to be trained as a facilitator, or can help in any other way, please contact Christine Naismith at christine.naismith@edfa.org.au.
Of course, we need funding to support our initiatives, so please become a member of EDFA for just $25 per year (https://www.edfa.org.au/members/become-a-member/individual-membership-application/), or consider making a donation to our volunteer, not-for-profit organisation (https://www.edfa.org.au/support-us/make-a-donation/make-a-donation/).
Click here for our Facebook page – recent posts are below:
See our August 2020 calendar for this month's online events! To join a support group, click on Groups and find the strive group for your local area. For educational events, head to the Events tab on our page. Looking forward to seeing some new faces!
* Thanks to those who expressed interest, the closing date for the EOI applications for the focus group is Monday 3rd August *
Butterfly is looking for a few more applicants interested in being part of a Focus Group for Australia's first ED residential, EndED Butterfly House, on Sunshine Coast. Particularly from males, or the LGBTIQ community or families where English is not the primary language, to allow a diverse perspective.
If you are interested, send me your email (christine.naismith@edfa.org.au) & I will forward the EOI which Butterfly needs by next Monday 3rd August.
Purpose of the Focus Group
The purpose of this Consumer Focus Group is to provide feedback to the Residential Team on interior design, systems and process, and on the proposed model of care. While the facility has been built according to the design and architectural plans decided back in 2019, there is the opportunity for people with an experience of an eating disorder (directly and indirectly) and other interested individuals to provide input into the interior decorating and design features of the facility. Additionally we would like feedback on proposed systems and processes and the proposed treatment program as we believe that participants can provide valuable insight based on their own experiences.
Becoming involved on the Focus Group
It is envisaged that focus group participants will come from diverse backgrounds and situations and would include, but not be limited to individuals who:
• have a lived experience of an eating disorder
• have cared for a person with an eating disorder
• are from an Aboriginal and / or Torres Strait Islander background
• are from a culturally and / or linguistically diverse background
• identify as a member of the LGBTIQ community
• represent a span of age groupings
• live in metropolitan cities, towns, and rural or remote areas
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